Dr. Diana (a patient and doctor) explains POTS and dysautonomia. How do you know if you have it — even a test to try at home!
Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
Dr. Diana (a patient and doctor) explains POTS and dysautonomia. How do you know if you have it — even a test to try at home!
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
Twitter: @prettyill
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross
How do you find a doctor to follow this? I got shuffled around from one to the other and each one said they do not handle this. I have given up on finding someone to deal with this.
POTS, NCS, Dysautanomia, possible mild EDS
Wow this is amazing! I was diagnoised with Ehlers Danlos Syndrome 10 years aago. My mom and brother also have it. Sadly we have all suffered terrible with a multitude of issues. Minw mainly Kerataconis which will cause blindness, among other issues. My main concern has been my mom with her heart. This video is so helpful, we are now in the process of trying to find a doctor that can help diagnois Pots or something similar. I am so thankful for Diana, this is a very frustrating disorder, what makes it easier to deal with is having hope, which… Read more »
I live in new jersey, and I need a doctor. I have all the symptoms ou could you suggest ? I do have this..
Dr. Driscoll, I was SO thrilled to see that you are local! I’m 24yrs from McKinney, TX and was diagnosed with Neurocardiogenic syncope after struggling with blackouts and near fainting spells, which include loss of vision, hearing and strength. Now almost 10 years later I have lost my thyroid and gallbladder in addition to being diagnosed with POTS, Ehlers-Danlos Syndrome (8/9 out of 9) and suffering from unexplained chronic bone pain in my legs a few days a month. My condition(s) have been such a mystery to my family, and I know we would love an opportunity to speak with… Read more »
Hello Dr. Diana,
Thank you for all you do. I need something that I can take to my doctor to help explain this along with MCAD. I had a spontaneous spinal fluid leak in May of 2012 and dx with EDS in August of that year. I have become more and more ill since then. I belive I have Disautonomia/Pots and possbily MCAD which was triggered by my thyroid. Is this possible? I have over 60% or more of the symptoms you described in your video. Thank you
Living with pots….retired nurse, multiple symptoms, gi is bad, get chills, fatigued and migraines….meds make me worse. Would love support and personal recommendations
I was diagnosed with POTS 4 years ago finally. I say finally because I’ve actually had it for 20 years but kept being told I had anxiety and panic disorder because I felt faint or dizzy or my heart would race despite the fact that I didn’t feel anxious. Doctors made me think I was crazy. I b e mostly all of the symptoms you describe for POTS and the only thing I take is. Beta locker because of the fast heart rate. I’m going to get you book tomorrow. My only question is this,: I’m 48 years old –… Read more »